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Links to Other
Pages by Government
agencies Pages by Government Agencies and Central Authorities American Association for Chronic Fatigue Syndrome ATSDR Agency for Toxic Substances and Disease Registry, Public Health Assessments. ATSDR, is an agency of the U.S. Public Health Service. It was established by Congress in 1980 under the Comprehensive Environmental Response, Compensation, and Liability Act, also known as the Superfund law. This law set up a fund to identify and clean up our country's hazardous waste sites. The Environmental Protection Agency, EPA, and the individual states regulate the investigation and clean up of the sites. American College of Physicians (ACP). AHA Central Office. This site is an integral extension of the AHA's Central Office on ICD-9-CM. AHAData.com provides comprehensive healthcare data online. American Psychiatric Association. American Psychological Association. Chronic Fatigue Syndrome Information Page has been put together by the National Institute of Allergies and Infectios Diseases. It is a good overview of the illnesses and current theories about its cause. A CFS page has been set up by the Centre for Disease Control (CDC), with sufficent information on who gets CFS, popular treatments, ideas on its cause and more. Canadian Institute for Health Information. Canadian Medical Association Online (CMA). CDC Home Page Center for Disease Control and the CDC WONDER, which provides a single point of access to a variety of CDC reports, guidelines, and even numeric public health data. Central Office on ICD-9-CM The International Classification of Diseases, Ninth Revision, Clinical Modification, ICD-9-CM, is a classification system that groups related disease entities and procedures for the reporting of statistical information. The clinical modification of the ICD-9 was developed by the National Center for Health Statistics for use in the United States. CFSCC (DHHS CFS Coordinating Committee) Web site. ClinicalTrials.gov Linking patients to medical research. CRISP Database. CRISP (Computer Retrieval of Information on Scientific Projects) is a searchable database of federally funded biomedical research projects conducted at universities, hospitals, and other research institutions. Dept. of Labor (U.S.) line to the ERISA Act Employee Retirement Income Security Act (ERISA), (29 USC §1001 et seq., 29 CFR 2509 et seq.). ERISA is the keystone of U.S. federal legislation concerning employer-provided health and welfare plans (pensions, health and disability insurance, etc.), and is administered jointly by the U.S. Dept. of Labor and the U.S. Internal Revenue Service. FedStats More than 70 agencies in the United States Federal Government produce statistics of interest to the public. The Federal Interagency Council on Statistical Policy maintains this site to provide easy access to the full range of statistics and information produced by these agencies for public use. Federal Register; 1995, 1996, 1997 and 1998. Food and Drug Administration, with pages on Nonprescription Medicines: What's Right for You? Health Canada Laboratory Centre for Disease Control MedSpecNet Canadian medical affiliates. MigDB - The Mitochondria Interest Group. National Center for Health Statistics (NCHS) (USA) and the International Classification of Diseases, 9th Revision, Clinical Modification (ICD-9-CM) NIAID (USA). National Institute of Allergy and Infectious Diseases Home Page, has produced several fact sheets and brochures on CFS. NIDCD National Institute on Deafness and Other Communication Disorders Webpage (part of NIH, USA). NIH National Institutes of Health (USA) NIH Special Interests Groups - Epidemiology & Clinical Trials Interest Group (USA). NIH Clinical Research Studies: Search and Browse Page (USA). Search the collection of research studies being conducted at the NIH Clinical Center by: entering the diagnosis, sign, symptom, or other key words or phrases; or browse by institute of primary investigator or primary disease category. Overview of NIAID Chronic Fatigue Research Program RCPSC Royal College of Physicians and Surgeons of Canada. Social Security Online (USA) has a factsheet on Providing Medical Evidence to the Social Security Administration for Individuals with Chronic Fatigue Syndrome; a Guide for Health Professionals. The CFIDS Association of America U.S. National Library of Medicine (NLM). CFS OrganizationsThe Worldwide
Electronic CFIDS/ME Action Network (WECAN). The American Association for Chronic Fatigue Syndrome (AACFS) is a non-profit organization of research scientists, physicians, licensed medical healthcare professionals, and other individuals and institutions interested in promoting the stimulation, coordination, and exchange of ideas for CFS research and patient care as well as periodic reviews of current clinical, research and treatment ideas on CFS for the benefit of CFS patients and others. AYME is the Associtation for Youth with Myalgic Encephalomyelitis, based in England. The CFIDS Association of America is the nation's leading charitable organization dedicated to conquering chronic fatigue and immune dysfunction syndrome (CFIDS). The National CFIDS Foundation, Inc. in America was founded in February 1997 by two 14 year activists of the CFIDS movement. The goals of the Foundation are to help fund medical research to expedite a treatment and eventual cure, to provide information, education, and support to those people who have CFIDS and related illnesses including FMS, GWS, and MCS. Two Australian links: The Northern Rivers ME/CFS Society web page, with details of supports groups in northern NSW and southern Queensland; and the ME Society of NSW has a web page, with info on becoming a member and services available. MPWC Is Medical Professionals With CFS. This group was formed in 1993 by Gail Dahlen and Meghan Shannon to give MPWC's an opportunity to coordinate their efforts, support each other, and make a difference for all PWC's. RESCIND ("Repeal Existing Stereotypes about Chronic, Immunological and Neurological Diseases"), Inc. is a non- profit 501(c) 3 corporation. RESCIND's primary goal is to change the name "CFS" to something more accurate and less pejorative. The
Chronic Syndrome Support Association, Inc. is a 501(c)3 non-profit
corporation. It was founded in order to educate the general population
and health-care professionals who lack current knowledge of the research
being done, and potential research that needs to be done,Ê on these
serious, yet invisible, conditions [CFS and others].Ê It is our goal
to promote awareness of these conditions, and in the process we hope to
contribute to the growing body of knowledge about them.
Advocacy Sites
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